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NTF News August 2020

Tremendous start to "The Journey"

Neurological tremor awareness campaign "The Journey of a Thousand Miles " saw a tremendous start this July.

By taking part in this virtual "journey" the NTF hopes to encourage people to engage in some activity such as a walk around their garden, a run or cycle ride, or any other physical activity, whilst raising awareness of tremor.

NTF Honorary President Lord Julian Fellowes, creator of “Downton Abbey”, who also has Essential Tremor, launched the campaign on the 4 July at an online event.

SPECIAL ANNOUNCEMENT: This Saturday 8 August is The Journey special, where we will be joined by Coronation Street actor Rob Mallard. If you would like to ask us to put forward a question to Rob please contact events@tremor.org.uk

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Latest On The Campaign To Ensure People With Essential Tremor Have More Choice On The NHS

We would like to take this opportunity to update you on the campaign to ensure Focused Ultrasound  is available on the NHS for the treatment of ET

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ET Impact Survey

Thank you to everyone who took part in our first ET impact survey. From the responses, we have been able to gain insights into the effects that ET can have on a person’s life.
 

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Tina's story

Artist Tina Martin talks about art and living with essential tremor.
I have drawn since I was a young child, and was always aware that I have ET as my hands shook lightly, and I was taken for a nervous child...

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Read more stories

Thank you!

We would like to thank everyone who has donated to the NTF this month. Your contribution is much appreciated and we really value your support. The NTF relies on donations to ensure it supports people with tremor. As little as the price of a cup of coffee could make the difference to someone's life.
Donate

Support group news round up

Jackie Farrell, Support Groups
& "The Journey" Coordinator

A big thank you to everyone who supported the Saturday online tremor support groups during July. We met weekly to share participants stories of their journeys as we virtually travelled the first 1000 miles of “The Journey”.

We look forward to continuing our travels to new and exciting destinations.

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Online events in August/September

Please note:
  1. There will be new meet-up times from 15th August.
  2. There will be no event on Bank Holiday Weekend (Saturday 29 August)
  3. From September the main event will the first Saturday of each month.
We advise people to regularly check our website for more updates.
The Journey update special
8th August, 11.15am–1pm
A special update on our tremor awareness campaign The Journey.

REGISTER

The Journey update & informal chat
15th August, 11am–12pm
A special update on our tremor awareness campaign, for participants & those wanting to take part.

REGISTER

The Journey update & informal chat
22nd August, 11am–12pm
A special update on our tremor awareness campaign, The Journey, for participants and those wanting to take part.

REGISTER
Tremor lunch meet-up 🍽
26th August, 12.30pm–1.30pm
The NTF will trial a lunchtime pop in meet up. The idea is for people to pop in anytime between 12:30-13:30 for an informal get together and social chat. If popular this will become a weekly event.

REGISTER

Bank holiday weekend-no meet up this week!
29th August
There will be no meet-up this week due to Bank Holiday.

Monthly tremor meet and greet
5th September, 10.30am–12pm

Our monthly tremor meet and greet for all members.

REGISTER
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Get involved & submit a story or an idea!

Do you have a news story or an idea for fundraising?
Then please
contact us.

Please note these newsletters will be monthly and deadline for submissions will be the 14th day of each month.
Disclaimer: The materials contained within this newsletter are provided for general information and guidance purposes only and do not constitute advice in their own right. If you require legal or medical advice please contact a suitably qualified professional.

Copyright © 2020 National Tremor Foundation, All rights reserved.


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