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Read below for your bi-weekly update about the BC SUPPORT Unit's activities.
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 -  November 21, 2018 -
Resources & Training | New ethics resource announced for researchers
Researchers: are you curious about ethics in patient-oriented research?

The Unit has completed a student project called “Ensuring the Ethical Conduct of Patient-Oriented Research: A Guide for Researchers.” This guide resulted from a literature review on the unique ethical considerations in patient-oriented research. It's been developed as a guiding document for researchers and includes a brief reading list in addition to the findings.
 
The document, and an accompanying webinar recording, can be found on our website.
 
We extend our sincere thanks to graduate student Sarah Flann (photographed above, left) for her work on this project. Sarah completed a draft and reviewed it with the Unit's provincial Patient Council in October 2018 before finalizing the document.
View the Resource
Upcoming Training Opportunities 

What is Patient-Oriented Research?
December 2, 2018 | 1:00 - 2:00 PM | UBC Okanagan
An introduction to patient-oriented research with some examples. Presenters from the Interior Centre will discuss the topic area and address questions about incorporating patient partners in your research.

T4P: Tools for Patient-Oriented Research
December 10, 2018 | 12:00 - 4:30 PM
T4P provides researchers / trainees with exposure to existing tools and resources for patient-oriented research. Spaces are still available, so register today.
Webinar | Reducing the Stigma of Substance Use and Building Capacity in Patient-Oriented Primary Care Research
December 3, 2018 | 12:00pm PST | Online

One of the lessons being learned as we navigate the current crisis related to illicit drug overdoses and deaths is an appreciation of how much the existing system of services for people who use substances falls short of meeting their needs.

This webinar highlights a project to address stigma in primary care settings toward people who use drugs. Hosted by Bernie Pauly, Karen Urbanoski, and Paige Phillips, participants will explore the research done to bring together academic researchers and community researchers (people who use or used substances) and other partners to develop a model of culturally safe primary care for people who use substances.


The above word-map highlights the eight key themes that would make people who use substances feel safe to go the doctor, developed from the focus groups.

Visit the Event Page
Regional Centre Update | Building connections at the Fraser Health Patient Experience Conference 2018

The Unit’s Fraser Centre connected with stakeholders and built awareness about patient-oriented research and the BC SUPPORT Unit during the 2018 edition of Fraser Health’s Patient Experience Conference, held during the second week of November.

Highlights of the conference included:
  • A pre-conference session for patients and the public focused on health research in the media. This session built on the previously-successful public Community Conversations event in February of this year, developed in collaboration with patient partners. and involved a lively conversation.
  • A workshop called "Dr. Google", which provided tips and tricks for using a critical eye when searching online and explored the myths and realities of primary care physician access.
"The info was priceless and I feel I am better informed,” one attendee stated following the sessions.

Additionally, Rableen Nagra, the Fraser Centre Patient Engagement Specialist, showcased her work on South Asian community engagement in a poster presentation at the SPOR Summit 2018, held last week in Ottawa. The poster presentation was well received, and she won third place in the competition. Congratulations to Rableen!
Learn More about the Fraser Centre
Methods Clusters Corner | Cluster updates for all stakeholders

Patient Centred Measurement (PCM) Methods Cluster Update

PCM Methods Cluster Lead Rick Sawatzky has announced two additional dates and locations for upcoming patient focus groups and stakeholder workshops:
  • Vancouver (December 6-7, 2018)
  • Langley (December 10,12, 2018) 
If you'd like to attend any of these upcoming sessions, please email Chung Liu.
See More Details About the PCM Methods Cluster Events
Patient Engagement Methods Cluster Update

The Patient Engagement Methods Cluster has released their Report on Stakeholder Consultations for Methods Cluster Development.

The report is available as a PDF on our website. 
Read or Download the Report
Ministry News | Ministry publishes policy on access to health data for research

The BC Ministry of Health is pleased to publish a new policy on Access to Health Data for Research, which came into effect on September 1st, 2018. The policy’s objective is to increase knowledge through research while appropriately protecting the privacy of individuals.

The new policy represents a significant milestone. While many of the provisions reflect long-standing Ministry policy and practice, it's the first time that the Ministry has formally documented its policy with respect to data access for research purposes. Its implementation is part of the Ministry’s research and knowledge management strategy (Putting our Minds Together) and broader efforts being undertaken to improve appropriate and timely access to health sector data, including the Ministry-led, Strategy for Patient-Oriented Research (SPOR)-funded Health Data Platform Initiative.

The Ministry would like to recognize David Loukidelis, a former Information and Privacy Commissioner and Deputy Attorney General in British Columbia, who assisted in the development of the policy direction and conducted extensive consultations with government staff and stakeholders. The policy can be accessed on the Ministry of Health’s website by clicking here. Researchers will continue to initiate requests for access to Ministry of Health data via PopulationData BC.
Read the Policy
Training Opportunities

POINTERS (BC SUPPORT Unit Webinar Series):
Other Webinars and Online Courses
In-Person Conferences,Training, and Events Know of other training opportunities? Please let us know
Funding Opportunities Know of other funding opportunities? Please let us know
BC SUPPORT (Support for People and Patient-Oriented Research and Trials) Unit:
Part of Canada’s Strategy for Patient-Oriented Research (SPOR)
led by the Canadian Institutes of Health Research (CIHR), and a unit of the
BC Academic Health Science Network (BC AHSN).
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Please contact Justin Otteson.
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Vancouver, BC V6H 4A7

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