Read below for your bi-weekly update about the BC SUPPORT Unit's activities.
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 - May 2, 2018 -
Provincial Conference | Call for abstracts: submit your ideas!

We want to help you raise awareness about your patient-oriented research (POR) project! Anyone interested in patient-oriented research can submit their abstracts for a breakout session or a poster at our second provincial conference. Students are encouraged to participate with their projects. The abstract deadline is June 17th, 2018. See our Call for Abstracts page, or view the PDF version for more details. Please spread the word!

Putting Patients First: Lessons Learned for Patient-Oriented Research (#PPF18) will be held on October 4th, 2018 at the Marriott Vancouver Pinnacle Downtown (1128 West Hastings Street), Vancouver.

Find out why this conference is important to patients, researchers and health care providers, and read about our conference goals and learning objectives. This conference has been accredited by Patients Included

Read the Call for Abstracts
Get Involved in POR | BC SUPPORT Unit seeks new patient council members

Would you like to be part of a ground-breaking, culture-shifting initiative intended to ensure health research is done in partnership with patients and focuses on priorities that matter to patients?

We're looking to fill four to six vacant seats on our provincial Patient Advisory Council. We're committed to creating an inclusive, safe environment for people to contribute meaningfully and actively. As a member of the Council, your opportunities are diverse – everything from helping to shape policy to participating at workshops, planning meetings and review panels.

Become a Patient Council member
Patient Partners | Patient partners share their thoughts about recent health research conference

"I’m not simply a person accessing services...I am also providing an opportunity for improvement in care."

Last month, patient partners from across BC were sponsored by the BC SUPPORT Unit to attend the Centre for Health Services and Policy Research (CHSPR) conference, called The System Awakens: Building Learning Health Systems in Canada

Following the conference day, two of these patient partners, Teri and Miranda, were asked for their thoughts, which Lupin Battersby, Fraser Centre Knowledge Translation Specialist, compiled in a short article. 

Read the full article
Upcoming Events | BC SUPPORT Unit staff and stakeholders prepare for June KT Canada Scientific Meeting; Event registration still open

The 2018 Knowledge Translation (KT) Canada Annual Scientific Meeting is being held on June 7th and 8th, 2018 in Vancouver, sponsored by the Unit and the Michael Smith Foundation for Health Research (MSFHR). This year's theme is "Advancing the methods of patient-oriented knowledge translation research."

The BC SUPPORT Unit will have a strong presence at the event. In addition to staffing a booth in the networking area of the event, Nick Bansback, Health Economics and Simulation Modelling Methods Cluster Co-Lead, is leading a discussion on "engaging patients in health economics research" and Alison Hoens, Knowledge Translation Specialist, will be a panelist in a discussion about evaluating patient engagement. 

Clayon Hamilton and Cheryl Koehn will be panelists for an additional discussion about evaluating patient engagement, which will be moderated by Bev Holmes, President and CEO of MSFHR. All are members of the Unit's diverse stakeholder network.

  • Are you an expert in KT? We have a current opening for a Knowledge Translation Lead at our Provincial Hub.
  • There's still time to register for the Scientific Meeting! Start by clicking the button below.
Register for KT Canada's event
Regional Centres | Island Centre to host event on May 16 about Medical Assistance in Dying

On May 16th, 2018, the BC SUPPORT Unit Vancouver Island Centre will be hosting a public event called Journeying through Medical Assistance in Dying (MAiD). This event is part of Island Health’s "Five Days in May" Research Month which aims to educate, inform, inspire and stimulate Vancouver Island members of the public, researchers, clinicians and decision-makers to share ideas around improving health care through research.
The Vancouver Island region has a MAiD rate that is unmatched elsewhere in Canada; therefore, this region is ideal for conducting research on this topic.

The overall goal of this event is to stimulate new research ideas and new patient-oriented research collaborations on the topic of MAiD. Following several framing talks by researchers, a physician and a health system decision-maker, this session will focus on discussion with the public attendees. It will include a panel discussion between people who have recent, personal lived experience in supporting loved ones through MAiD. Attendees will then be invited to engage in a group discussion on the challenges around delivering and receiving MAiD.

This event is available both in-person and remotely via WebEx. A recording will be posted online following the event. Please click the button below for both in-person and online registration.

Register for this event
Regional Centres | Fraser Centre celebrates first year of operations

The BC SUPPORT Unit Fraser Centre is marking its first anniversary, and staff members want to thank you for contributing to a very productive and rewarding first year!

Since the centre launched in April 2017, staff have logged 90 consultations, held 24 presentations and workshops, launched a Planning Awards competition and have funded four regional multidisciplinary research teams. 

More recently, the team started a new plain-language summary process for researchers through the Fraser Health Research Study Database. In addition, the regional centre is hosting a Patients Interested in Research group for community members to learn, connect, and promote POR, and has also established an annual event called Community Conversations, which brings public stakeholders together to find and use health research (click here for a recap of this event, held in February 2018).

The Fraser Centre is grateful to all stakeholders for their thoughtful and kind support!

  • To learn more about the centre's involvement in the upcoming Fraser Health Research Week in June, please click here.
Congratulate the Fraser Centre
Webinars | BC SUPPORT Unit partners with Ministry of Health for May 4 webinar about health data platform

Join us for a webinar about our work on the provincial health data platform! This Friday, May 4th from noon to 1:00pm, Shirley Wong, Executive Project Manager, Strategic Data Initiatives at the Ministry of Health, will describe how the ministry and BC SUPPORT Unit are collaborating on the development of the Health Data Platform Initiative to enable data sharing within the BC health sector that is built on leading privacy and security practices. This webinar will be of interest to academic and clinical researchers, health system policy and decision makers, and patients.

Don’t miss this opportunity to learn more about the Health Data Platform initiative and how it will help transform access to data and enable better data analysis, positioning BC for greater excellence in health research that will ultimately make a difference in the health of British Columbians and the sustainability of our health care system.  

Get webinar login and info
Methods Clusters | The latest updates about the Unit's Methods Clusters

Workplans, which include the proposals for each of the projects moving forward for the Knowledge Translation /Implementation Science (KT/IS) and the Health Economics & Simulation Modelling (HESM) Methods Clusters have been internally reviewed by the BC SUPPORT Unit Science Council and are being refined for external review. The Real-World Clinical Trials Methods Cluster will be reviewed this week.
Four of the six Methods Clusters will be hosting webinars in June to provide the following updates:

Contact the Methods Clusters KT Specialist
Training Opportunities
Funding Opportunities

Canadian Breast Cancer Foundation:
BC SUPPORT (Support for People and Patient-Oriented Research and Trials) Unit:
Part of Canada’s Strategy for Patient-Oriented Research (SPOR)
led by the Canadian Institutes of Health Research (CIHR), and the 
BC Academic Health Science Network (BC AHSN).
 Subscribe to The Bulletin and receive important BC SUPPORT Unit announcements here

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Please contact Dan Enjo, Communications Specialist.
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