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April 2020 Newsletter

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NWSF UPDATES

Jo McNeal
Executive Director

“Never fear I am here to slay the dragon”, says the prince. This is the story of old with one hero who comes to rescue those in distress. The reality is you are the true heroes and I am excited to hear your stories and I look forward to working with you.

My story, I am a PNW native born and raised. I have worked with blood cancer and mental health non-profits prior to joining the NWSF. Supporters from the prior organizations have left imprints on my life and career. I am looking forward to the imprints that we will make together to improve the lives of those are fighting sarcoma, survived and remembering those we have lost.

As a society we are facing some difficult times, yet we will weather this together as a team. For the safety of all our supporters and the community at large, please continue to follow the CDC recommendations. The board of directors and staff have taken steps to ensure that NWSF will continue efforts in patient grants, fundraising events, and other social activities. We will continue to monitor events and activities as our states leaders make updates and suggestions to keep us safe.

We look forward to seeing you, in person, at an event later this year. Please mark your calendars for the rescheduled Seattle Dragonslayer Walk, now September 13, 2020 at Magnuson Park or the Portland Dragonslayer Walk on September 19, 2020 at Oaks Amusement Park. Information will be provided in the months to come regarding other fall events throughout the PNW.

I would like to thank Lisa Edwards, the outgoing executive director, for her dedication and support over the past few years in guiding the organization.

OREGON FAMILY FUN EVENTS


Smell the Roses, June 19, 11 a.m. - 2 p.m.  Tour of the Portland Rose Garden and picnic. Click HERE to learn more or RSVP - tickets limited. 

NWSF hosts family fun events in the greater Portland area for sarcoma patients, survivors and their families. Funding for these events are provided by the KCI Grant.


We also post events on our Facebook and Instagram pages.  More details to come!

  

2020 DRAGONSLAYER WALKS TO END SARCOMA

Seattle, WA: Sunday, September 13, 2020

Portland, OR: Saturday, September 19, 2020

9 a.m.-1 p.m.

JOIN US FOR OUR BIGGEST EVENTS OF THE YEAR AND HELP US FUNDRAISE FOR OUR PROGRAMS.​

Each year, the Northwest Sarcoma Foundation provides patient financial assistance and research grants, and organizes events to educate, support, and bring together the sarcoma community.  We are fighting to end the devastating impact of sarcoma.

Our Mission: To provide hope, education, and support to sarcoma patients and their families in the Pacific Northwest while investing in research to improve cure rates for sarcomas.

About the Walks:

Dragonslayer Walks are a non-competitive, non-timed, 5K walk to honor sarcoma angels, patients, and survivors and raise funds for NWSF.​

Register:
Seattle, WA: Sunday, September 13, 2020
Portland, OR: Saturday, September 19, 2020

  • To Form a Team - register yourself, create an account - and on the following page select "I want to create my own team".

  • To Join a Team - register yourself, create an account -  and on the following page select "I want to join an existing team".

  • Can't be at the walk in person?  Register as a Virtual Walker and fundraise (you can still be part of a team)!

REGISTRATION FEES (early bird rates end August 1st)

0-5 years old: FREE
5-12 years old: $20 (includes a t-shirt)
13+: $40 (includes a t-shirt)

*Register by August 20th to ensure you get a t-shirt

Inspiring survivor stories
Review our stories of past while we are learning more about current patient stories.
Help$ Stories.
COVID-19 FDA Update for Patients and Caregivers
The U.S. Food and Drug Administration (FDA) released a new webpage of information to help address questions patients and caregivers may have about FDA-regulated medical products (drugs, biologics, and devices) during the coronavirus (COVID-19) outbreak. The webpage is a source of information for patients during this time of crisis. Visitors to the page can find information on:
  • FDA COVID-19 resources, such as questions and answers on hand sanitizers;
  • How patients can report a drug, biologic, or medical device product shortage; and
  • Information on clinical trials and the FDA’s Expanded Access program.
 
Please visit the webpage at https://www.fda.gov/patients/coronavirus-disease-2019-covid-19-resources-patients. For additional questions you may have, please contact the FDA’s Patient Affairs Staff at 301-796-8460 or email patientaffairs@fda.hhs.gov.

Other Patient Resources:

For Patients


https://www.fda.gov/patients
 
Questions and Answers for Patients About Clinical Trials During COVID-19 Outbreak
 
https://www.fda.gov/patients/coronavirus-disease-2019-covid-19-resources-patients/questions-and-answers-patients-about-clinical-trials-during-covid-19-outbreak
 
Patient Affairs Staff (PAS)
Office of the Commissioner
U.S. Food and Drug Administration

Tel: 301-796-8460
Email: PatientAffairs@fda.gov

 
MOVING THE MISSION FORWARD
Hello supporters! We are here working the mission of the NWSF!

We are very fortunate to be an organization which already had its workforce working from home. Chelsea, Oregon Director, Annie, Accounting and Office Assistant, and new incoming Executive Director, Jo are making sure patients are continuing to receive grants to support them in our current social climate. We are hosting virtual team meetings, keeping down the spread of COVID-19, while making plans for all of our ongoing and upcoming fundraisers and fun events.

Currently, we have a hand sanitizer fundraiser - you can donate HERE to receive hand sanitizer or donate the hand sanitizer to a patient to ensure their health.


We are also asking for your support by donating directly to NWSF to ensure we continue the mission, join and start your fundraising for the Dragonslayer walks, and/or join us at our upcoming Virtual Dinner & A Show Together on Saturday, April 25, 2020, 6:30 p.m.

All funds raised help us continue to support sarcoma patients throughout the Pacific Northwest. We cannot thank you enough for your generous support. 


VIRTUAL DINNER  & A SHOW TOGETHER
You bring the dinner, we bring the show!

Saturday, April 25, 2020, 6:30 - 8 p.m. join NWSF online for a Virtual Dinner & A Show Together. We will be hosting a local comedian to bring some levity to our current sequestered days. Tickets are $25 for as many that are in your household. Once registered, you will receive a secure ZOOM link on Friday, April 24 to join the fun.

Comedian: Cris Larsen

RESOURCES
CANCER SUPPORT GROUPS ON THE EASTSIDE
So often when searching for a support group, you find most in the Seattle area. Here are a few on the greater eastside of Seattle, Washington. Next month we will feature support groups in the Portland, OR area.


Living with Cancer Support Group - EvergreenHealth

Open to those living with any type of cancer from diagnosis through post-treatment, including your family and friends.

Meets:
2nd Tuesday of the month
6:30-8:30 p.m. 
Halvorson Cancer Center Conference Rooms – Green 1270/1272

Information:
206.297.2500 or visit cancerlifeline.org

Living with Cancer Support Group - Overlake Medical Center & Clinics

For individuals who are just diagnosed, in treatment, or post-treatment.

Meets:
1st Wednesday of the month
10 a.m. - noon
3rd Wednesday of the month
6:30 - 8 p.m.
SCCA Cancer Center @ Overlake Medical Center & Clinics

Information:
800.255.5505 or visit cancerlifeline.org

Founded in 1996, the Northwest Sarcoma Foundation offers hope, education and support to sarcoma patients in the Northwest.
Copyright © 2020 Northwest Sarcoma Foundation, All rights reserved.


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