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July 2020 Newsletter

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NWSF UPDATES

Jo McNeal
Executive Director

July is Sarcoma Cancer Awareness Month. We need you to take action and join us in helping to discover a cure through research and support patients in need. There are many ways you can support; register and fundraise for the Dragonslayer walk, create a fundraiser on Facebook or Instagram, volunteer with us on a committee, be a voice and share your story, and most of all donate to support the mission.

Dragonslayer Walk weekend, September 18 - 20, 2020. Last month we decided to go virtual with some changes to the walk which are new to many of our Dragonslayer Walk alumni. We moved away from a registration fee to participate which means more people can join us in our efforts. We encourage you to use your personal stories that connect you to the NW Sarcoma Foundation on your personal fundraising pages. Use those stories to fundraise through Facebook, Instagram, LinkedIn, YouTube, email or any other ideas you may have. The funds raised are important in the effort to find a cure through research in the Pacific Northwest to help patients from around the world. You are part of the future where we are part of the cure, join us!


If you haven't visited our website in a while, check it out, www.nwsarcoma.org. We are making updates and changes. We have new webinars listed to our resources and more resources overall are being added regularly. We have been posting regularly to Facebook, Instagram and Twitter. We would love to see your support on these posts. We just received a Google Ads grant too, so keep an eye out and click on our ads. Thank you for all your help and support, all your efforts help support research and patients in the PNW!

Please continue to follow CDC's stay-safe guidelines, our governments stay-home orders and we will get through.

HELP US, TAKE A SURVEY!
*Some Come with Rewards*

Webinars

WEBINAR SURVEY

HELP$ Grant
If you have been a recipient of a HELP$ Grant, we would like to hear from you! Please fill out this short 9 question survey and receive a gift card, while supplies last. Limit is one per person. 


HELP$ SURVEY

Patient Needs
We're looking for your feedback. Please assist us with your opinion regarding sarcoma patient's greatest non-clinical needs as a result of their sarcoma diagnosis and treatment.Click the link to fill out this brief survey. 


PATIENT NEED SURVEY

Part of the Knight Cancer Institute Grant has funded webinars for patients and families. We would like to know what was helpful information. Topics range from alternative care to career advice. Watch a webinar(s) and fill out a short 7 question survey. Participants will receive a long sleeve NWSF shirt, while supplies last. Limit is one per person. 
COMMITTEES AND VOLUNTEERING

Have you wanted to be involved more with us and didn't know how? Do you have time to volunteer and you're not sure where? Do you have ideas that you want to share and you need an outlet? 

We are looking for volunteers to join three committees in development. Short descriptions below and once we finalize our volunteer job descriptions, we can send to you directly for review. The goal is to have these committees developed and begin meeting by Oct./Nov. 2020.

Finance
The finance committee is responsibility for ongoing review of all financial statements and financial activity and reports to the board of directors.

Governance
The governance committee is responsible for ongoing review and recommendations to enhance the quality and future viability of the board of directors and the organization's policies and by-laws.

Events volunteer
The events volunteer committee is responsible for ongoing planning, review and recommendations for fundraising events. This is an opportunity to work on rewarding projects, meet new people and aid in building a Sarcoma Community in the Pacific Northwest. Events can range from fundraising dinners to the annual Dragonslayer walks.

These committees will meet via ZOOM, you can participate from any state in the PNW! Contact us and let us know where you are interested in volunteering.

Mission Moment
I had the privilege of meeting two supporters in person this past month. Each were caregivers to someone slaying sarcoma. Their stories are inspiring and hurt your heart at the same time. Their sarcoma slayers have been grant recipients and mentioned how the funds impacted them during treatment. One mentioned how it helped them get transportation to treatment and another mentioned how their slayer purchased some books to help them get back to work once treatment was complete, made them feel hopeful. Most of all, both were supportive of the mission of NWSF, they want to be a voice for us, and they understand that research is the key. I am impressed daily by our sarcoma slayers and their caregivers. Thank you for all you do.

Have a mission moment? We are always wanting to hear how a grant has impacted your sarcoma journey. Send us your stories and ideas of how we can help spread HOPE to our Dragonslayers - email us at info@nwsarcoma.org.

                           
                     #DragonslayersUnite 

2020 DRAGONSLAYER VIRTUAL WALK WEEKEND TO END SARCOMA

September 18 - 20, 2020

JOIN US FOR OUR BIGGEST EVENT OF THE YEAR AND HELP US FUNDRAISE FOR OUR PROGRAMS.​

About this year's Virtual Walk:
No registration fee! To receive this year's unique tee-shirt, individual registrants who raise $150 by September 20 will receive a link to order a Dragonslayer walk 2020 tee-shirt.

We still encourage you to participate in the monthly fundraising challenges for additional NWSF swag. Please consider creating a team too!

Register:

Dragonslayer Walk are to honor sarcoma angels, patients, and survivors and raise funds for NWSF mission.

PEER-TO-PEER MENTORSHIP PROGRAM

When I joined NWSF I had a desire to create a patient-to-patient peer program similar to one that existed with another organization I worked with. I had heard from our board of directors and others that this is greatly desired. I asked around to a few people and through connections learned about Imerman Angels. I am a firm believer that if there is an organization doing a good program, I do not need to recreate it, which leads NWSF to partner with Imerman Angels.

To be a partner, we need patients, caregivers, survivors and/or previvors (positive genetic testing for predisposition to certain cancers/diseases) to register with Imerman Angels as a representative from NWSF. Please consider joining their efforts and ours to help mentor others on their path through sarcoma by registering with Imerman Angels. This will help ensure, "no one should face sarcoma alone" - our tag which aligns with theirs, see below.



Imerman Angels was created on the belief that no one should face cancer alone. The mission is to provide comfort and understanding for all cancer fighters, survivors, previvors and caregivers through a personalized, one-on-one connection with someone who has been there. Through a unique matching process, we partner anyone touched by cancer with someone just like them: a “Mentor Angel”. A Mentor Angel is a cancer survivor, previvor or caregiver who has faced the same type of cancer. The service is free to anyone touched by any cancer, any stage, any age, any gender, anywhere in the world.   

Imerman Angels has over 250 active sarcoma Mentor Angels and 50 Caregiver Mentor Angels. Since 2011, over 180 sarcoma fighters and 80 caregivers have been helped through our free 1 -on-1 cancer support services. Imerman Angels is proud to be celebrating and participating in Sarcoma Awareness Month.   

Founded in 1996, the Northwest Sarcoma Foundation offers hope, education and support to sarcoma patients in the Northwest.
Copyright © 2020 Northwest Sarcoma Foundation, All rights reserved.


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