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CGRN NEWSLETTER
Childhood Glaucoma Research Network Annual Meeting

October 2019
Thank you to everyone who joined us for our Childhood Glaucoma Research Network Annual Meeting held during the 2019 American Academy of Ophthalmology Annual Meeting in San Francisco, California, USA on October 13, 2019. For those that missed us, you'll find a summary of the meeting, information on current CGRN projects, and more below.


We look forward to seeing you next year at AAO 2020!


We're sure you've noticed that we have a new look. We have a few more changes that you will see rolled out throughout the next few months. Stay tuned!

Table of Contents:

We know this email has a lot of content. Click the links below to be brought to the section you wish to see more about.

  1. Severity Staging System of Childhood Glaucoma
  2. Pediatric Preventable Blindness
  3. iGenetics: The Sandbox Consortium
  4. AAO Course: Surgical Management of Pediatric Glaucoma
  5. CGRN Publication: AGS Position Statement on Cannabinoid Use
  6. Books: WGA Consensus Series & Surgical Management
  7. Upcoming Worldwide Pediatric Glaucoma Events
Download the Presentation

SSSCG: Severity Staging System of Childhood Glaucoma

The CGRN is aiming to construct a Severity Staging System of Childhood Glaucoma by
constructing a statistical model to predict IOP and Visual Outcome through the retrospective review of medical records of children with glaucoma. A severity scale allows for the prediction of patient outcome, allowing for the comparison of quality-of-care, improvement in clinical decision-making, and stratification for clinical trials.
 
In the attached presentation, you can learn more about our completed and published test of concept study. We are currently verifying and expanding the model on a larger patient population.

Data collection is ongoing with 7 additional centers alongside Bascom Palmer Eye Institute and we want your institution to get involved in the creation of a Severity Staging System for Childhood Glaucoma. Project Contact: Huda Sheheitli, MD at hxs691@med.miami.edu

Participate in the SSSCG
Left: Elizabeth Vanner, PhD of Bascom Palmer Eye Institute presenting the Severity Staging System of Childhood Glaucoma. Right: Matthew Javitt, Research Fellow at Bascom Palmer Eye Institute and Project Coordinator for PPB, presenting Pediatric Preventable Blindness.

PPB: Pediatric Preventable Blindness

Pediatric Preventable Blindness (PPB) wants to reduce preventable blindness in children by increasing the availability of early vision screenings. PPB will begin by screening infants and children in the Caribbean nation of Suriname through a collaboration with vaccination clinics. The screening will then expand to other Caribbean nations and create a model that can be used globally. You can learn more about our new initiative by downloading the full presentation available at the beginning of this email.
Contact Matthew Javitt at mjj64@med.miami.edu for more information. 

iGenetics: The Sandbox Consortium

Our panel of geneticists can review cases to decide if genetic testing should take place for patients and families if your institute cannot provide access to genetic resources or testing.

Contact The Sandbox Consortium

Course: Surgical Management of Pediatric Glaucoma

For our 6th year, the CGRN hosted the Surgical Management of Pediatric Glaucoma Instruction Course at AAO. Presenters included Dr. Alana Grajewski, Dr. Allen Beck, Dr. Elena Bitrian, Dr. Jamie Brandt, Dr. Ta Chen Peter Chang, Dr. Sharon Freedman, Dr. Karen Joos, and Dr. Bibiana Jin Reiser.

The two-hour course gave practical knowledge on when and how to perform surgery for pediatric glaucoma. The presentations included clinical cases and surgical technique videos. All the surgical techniques performed in pediatric glaucoma were presented: angle surgery (goniotomy and trabeculotomy), trabeculectomy, glaucoma drainage devices, cyclodestructive procedures, and newer techniques.

For the 2nd year in a row, a wet/dry lab using synthetic model eyes was done at the end of the course to show participants how to apply the techniques mentioned. Our course was supported in part by the generous contributions of Sight Sciences, providing course participants materials, microscopes, model eyes, and assistance in using the OMNI during the wet/dry lab; New World Medical for supplying materials and assistance for demonstration of the Kahook and ClearPath; and Iridex, for providing materials and assistance for our transscleral cyclophotocoagulation (TSCPC) “dry” wetlab stations.

Publications

American Glaucoma Society Position Statement on Cannabinoid use in Pediatric Glaucoma Patients was accepted to Ophthalmology Glaucoma
Adriana L. Grossman, M.H.A.,1 Matthew J. Javitt, B.S.,2 Steven J. Moster, M.D.,3 and Alana L. Grajewski, M.D.3 on behalf of the Pediatric Glaucoma Subcommittee of the American Glaucoma Society (2017-2018)*
 
Thank you to the CGRN Members on the AGS Pediatric Glaucoma Subcommittee:
Allen D. Beck, MD, Lauren S. Blieden, MD, Elena Bitrian, MD, Ta C. Chang, MD, Sharon F. Freedman, MD, Elizabeth Hodapp, MD, Karen M. Joos, MD, Bibiana J. Reiser, MD, Angelo P Tanna, MD

WGA Consensus Series: Childhood Glaucoma

Childhood Glaucoma Book
Purchase Here: Available in Hardcover and as an eBook. Available in Spanish in late 2019 and being translated into Chinese.

Childhood Glaucoma Compendium (English)
Purchase Here: Available in print and as an eBook

Glaucoma Infantil un Compendio (Spanish)
Purchase Here: Available in print and as an eBook

All WGA Childhood Glaucoma Consensus Products
30% off with code
CGRN4ever

Surgical Management of Childhood Glaucoma: Clinical Considerations and Techniques

Purchase Here: Available as an eBook, Hardcover, and Softcover

  • Dozens of surgical videos and color illustrations and intraoperative pictures
  • Practical and illustrative guide for ophthalmologists
  • Surgical techniques from angle surgery to trabeculectomy, glaucoma drainage devices or cycloablation procedures
  • Guides the reader step-by-step along the surgical procedures

Upcoming Childhood Glaucoma Events

IPGS: 1st Indian Pediatric Glaucoma Society Meeting

December 7-8, 2019 at L V Prasad Eye Institute, Hyderabad, India
More information available at http://ipgs.org.in/
Download the IPGS Program

UKPGS: United Kingdom Pediatric Glaucoma Society Annual Meeting

January 24, 2020 in London, United Kingdom
Abstract Submission closes November 4, 2019
Noel Rice Lecture by Miss Maria Papadopoulos of Moorfields Eye Hospital, London, UK
More information available at https://www.ukpgs.org.uk/
Download the UKPGS Flyer

5th International Glaucoma Symposium

September 4-5, 2020 at the University Medical Center, Mainz, Germany
Featuring Childhood Glaucoma, Wetlabs, Surgical Cases, and Posters 
More information available at https://glaucoma-mainz.de/
Download the Glaucoma Symposium Flyer
Please forward this email to anyone who may be interested in becoming a member of the Childhood Glaucoma Research Network. Membership is free and open to all professionals dedicated to saving the sight and changing the lives of children with glaucoma.
Any questions can be sent to jillmote@miami.edu
BECOME A MEMBER
Copyright © 2019 Childhood Glaucoma Research Network, All rights reserved.


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